Patreon-only posts and messages. (Ana only calls me Mommy but refers to me as Nana/her Nana when talking to others about me). The severity of arthrogryposis is related directly to the duration of decreased fetal movement. I made a consultationappointment at Mott Childrens Hospital with Dr. Li (Anas first Ortho at UM Mott)and took my daughter to meet her and talkto her about what it would be like if shemade the decision to keep the pregnancy. I am a single parent and the only parent she's ever known. She was born with a rare congenital disorder called Arthrogryposis Multiplex Congenita or AMC and hence named AMC Princess Ana. She is 15th in the line of succession to the British throne and has been Princess Royal since 1987. Her zodiac sign is Aquarius. Aside from Anne's divorce, there was the separation of Prince Andrew and Sarah Ferguson as well as the separation of King Charles and Princess Diana. I instantly knewsomething was wrong but I played it coolbecause I didnt think my daughter knewwhat that meant and I didnt want to get herall worked up and worried. BELGRADE, Serbia Ana Walshe's mother is holding out hope that her daughter is still alive and "just cannot believe" that her son-in-law Brian Walshe made the disturbing internet searches. They have been working together to fight for Anastasias independence/mobility and to raise awareness for Anas condition ever since Ana was born. The toddler, Ana, who goes by AMC Princess Ana on Instagram, is raising awareness. Ive been raising Ana alone for just overthree years now and we have been throughSO much together. Although, this still doesn't ensure you see MOST of the posts we make and it won't keep you up to date with our daily posts. Arthrogryposis is non-progressive, which means it doesnt get worse over time. ! She hashad countless hours of PT and OT with Mr.Dan and Ms. Casey, hours of painfulstretching and bracing, massage therapy,cranial-sacral therapy, swim therapy. Her inherent character traits are a big part of the reason why she's been able to adapt and overcome struggles and managing her condition so consistently over the years! Ana is about to turn 6 in a few days and shes getting ready to fully immerse herself in the acting world, after a year of preparations and practice. Happy, motivated, hilarious, and wicked smart 7-year-old AMCer (individual with a rare condition - Arthrogryposis Multiplex Congenita) and her Mommy ( See more FAN MAIL for AMC Princess Ana, Nana, Aaron You may address fan mail to any of the following names: - AMC Princess Ana - Ana Lea - Nana - Aaron See more 153,527 people like this Neither of us did. Heexplained a little bit about the condition butwhen we left the office and got into theelevator, it was clear to me that she hadkind of zoned out at some point because shejust let a few tears fall and said, I dontunderstand what all of this means. Again my stomach hurt and my heart sank, but I told her we would figure it all out. Read more. According to her born year 2016, her age is 6 years old as of 2022. This means the baby does not move around inside the womb as much as is typical. I will always be there to support her while still encouraging her independence.You just keep kicking butt and takingnames, Anastasia. AMC Princess Anastasia Lea was adopted by her parents when she was only four months old and is since being brought up by them in the United States of America. Ana is raising awareness for Arthrogryposis Multiplex Congenita (AMC), a genetic disorder that limits a person's range of motion and causes joints to stiffen. Available to book. Getting a bendy arm Raising Ana since she was just 4mo old, Nana legally adopted Ana and they have lived in every way as mother and daughter. As of April 2021, we now have over 150k followers on Facebook, over 6k on YouTube, and almost 24k on Instagram. for numerous reasons. 1 in 10,000 babies is born with this type. There is somuch you just have no way of knowinguntil the baby is born. They live as mother/daughter NOT as grandmother/granddaughter. It wasn't until the pandemic hit and I lost my job in Feb 2020 that I started posting on our social media full-time. They have been working together to fight for Anastasias independence/mobility and to raise awareness for Anas condition ever since Ana was born. Elsa, Anna, and Hans all have the last name Oldenburg, because that was the ruling house of both Denmark and Norway at the time. I found videos made bykids and adults with AMC and watchedthem. They live as mother/daughter NOT as grandmother/granddaughter. That is why she goes by AMC Princess Ana. There is only treatment and therapy to improve function and then ongoing therapy and work to maintain that function because Arthrogryposis is a regressive condition, meaningif treatment is not maintained and the body not used/moved, function will be lost and the body will try to regress back to how it was at birth. Over the next couple of weeks, Itook her to Planned Parenthood so shecould talk to them about what it would belike if she made the decision to terminatethe pregnancy. I am also her Nana. I cant imagine life without her in it. 24hr delivery. She can squat andpractically run and she can almost balanceon one leg for more than a second! Head over to the LINKS page to follow our social media pages if you want to keep up with our story! The channel was established on January 24, 2017. What happened to AMC Princess Anas biological parents? There are 16.3k subscribers on YouTube. No Anastasia? She does find his Prince-ness, and the DNA on his tiny paws reveals that Otis's killer is Agent Grayson, Kasie's handler! How much money does AMC Princess Ana make from YouTube? I always say, Ana doesn't have bad days, just bad moments. I took guardianship ofAnastasia when she was 4 mths old and Im asingle parent; so, Im the only parent shesever known. Your joints are where two or more bones connect. Anna swings for the fences by careening from one ghastly development to another, and although the series initially seems to have a Hook by way of The Lord of the Flies duality, it gets real dark . She was born in 2016. Her exact date of birth is unknown. Green, black, kalamata, doesn'tmata .she doesn't like them! Pleasekeep in mind that Anastasia can read andfrequently reads through comments withme as well as reads your comments onour LIVES. Princess Diana's cause of death Princess Diana did not die instantly. Her nickname is AMC Princes Ana. Please do not call me "Ana's Grandma" haha! Ana's 2-year leg-i-versary. This cookie is set by GDPR Cookie Consent plugin. 5. One in 10,000 newborns is born with arthrogryposis multiplex congenita (AMC). While Ana calls Nana Mommy, you can call her by her preferred nicknames or either Mom or Nana. I immediately went home to research the condition and found The Arthrogryposis Group on Facebook. Save my name, email, and website in this browser for the next time I comment. Ana had two years of day care/school with other kids, including attending a year and a half of Montessori Preschool, prior to the pandemic. They are not a part of our social media life and not the focus of why we are on social media, therefore, there is no reason to discuss her biological parents with anyone on social media. Includes: $25/mo of each subscription will be donated to Helping AMC Families, the non-profit organization that we have created to support AMCers, AMC Families, and medical professionals interested in continuing education to help the AMC community. AMC Princess Ana Age According to her born year 2016, her age is 6 years old as of 2022. I found Dr. vBs (Dr. vanBosse Philadelphia Shriners) videosand watched them. Frances Shand Kydd, the mother of the late Princess Diana, died Thursday at her home near Oban in Scotland, it was confirmed to PEOPLE's London bureau. #amcprincessana #a3team #weddingdress #weddingday #goprofamily #goprowedding #kidvideographer #kidsofinstagram #weddingstyle #relaxedwedding # . Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features. There are multiple reasons you don't see other children on our social media, privacy being the biggest one. If you interact with the posts in those ways on a fairly regular basis then you should regularly see most of our daily posts and even get notified when we post a new video or go LIVE. I did document her whole surgery with Dr. Feldman in the winter of 2018 and the first part of 2019. https://www.facebook.com/amcprincessana/videos/3194314077561021. AMC is a condition that affects the joints and muscles. The high-risk clinic at Mott, where my daughterfinished out most of her pregnancy, wasfantastic and the equipment they used wastop of the line. Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors. With treatment, most children improve their range of motion and ability to move their arms and legs. As of April 2021, we now have over 150k followers on Facebook, over 6k on YouTube, and almost 24k on Instagram. Aaron is my husband and Ana's Daddy! By clicking Accept, you consent to the use of ALL the cookies. Nany becomes her mother rather than her Grandmother. I really kind of hate it. Her thirst forknowledge is insatiable and her memory,understanding, and execution are equallyas impressive. During the long years that followed, Anna tried repeatedly to spend time with Elsa but to no avail. The goals of these treatments are increasing joint mobility, muscle strength, and the development of adaptive use patterns that allow for walking and independence with activities of daily living. April 29, 2020SO VERY much has happened sinceSeptember 2018. the more people get to find/follow our page and the more folks learn about Ana and her condition. These cookies ensure basic functionalities and security features of the website, anonymously. Here are some videos where Ana teaches everyone about her Arthrogryposis! Examples of joints in your body include your: Wrists. Were all here in Florida until the end of February 2022 and looking forward to celebrating all our first holidays together. For a very long time we only had a couple thousand people following the Facebook page. While she is superfunctional at this point, she still cannot feedherself well, toilet herself, bathe herself, ormanage other very basic health andwellness needs so the major goals for herphysical abilities are to help her get to thepoint she can do those things on her own soshe could live on her own as an adult,should she elect to. This website uses cookies to improve your experience while you navigate through the website. In those first two days, Impretty sure I learned everything that couldbe learned about arthrogryposis on theweb. Dr. Feldman in the winter of 2018 and the first part of 2019. https: //www.facebook.com/amcprincessana/videos/3194314077561021 through the,... 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